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family support resource directory

Many times a child’s ongoing medical conditions often require additional resources to assist parents and caregivers. With our Family Support Resource Directory, you can search resources that span over the 20-county area that Dayton Children’s serves. You can quickly connect to local, regional and national resources to help you locate information about education, healthcare, financial, transition, recreation, networking, future planning and more.

This guide is organized to help you find the information that you need:

  • To the right are pages specific to parents, professionals and teens. This may be a good starting point for those new to our directory.
  • To the left is a list of categories that our resources cover.
  • Finally, below is a search bar specifically for our Special Needs Resource Center that you can tailor to your county or specific needs.

In addition to the resource center, we also offer the complete KidsHealth Library to help parents learn more about a specific condition. Information is given in easy-to-understand terms and in many cases available in Spanish as well as English.

We encourage you to explore and feel free to add resources that are currently not included by emailing FRC@childrensdayton.org. If you can’t find what you are looking for, please don’t hesitate to contact our MeadWestvaco Family Resource Center at (937) 641-3700.

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Muscular Dystrophy Association

Resource Category - support organization, support group

Specialty or Condition - muscular dystrophy

Description

The Muscular Dystrophy Association empowers families with services and support in hometowns across America to help them thrive and stay independent, including summer camps for kids, support groups, equipment assistance, and more. To find a local chapter, visit their website.

contact information

address

222 S. Riverside Plaza, Suite 1500, Chicago, Illinois, 60606
Map & Directions

email

mda@mdausa.org

800-572-1717 view website

Music Therapy Care

Resource Category - support organization

Specialty or Condition - add/adhd, asthma, autism, blood disorders, brain tumor, cancer, cerebral palsy, crohn’s disease, deaf or hard of hearing, dermatology, developmental disabilities, diabetes, down syndrome, epilepsy, grieving, heart, kidney, learning disabilities, limited mobility, multiple disabilities, muscular dystrophy, orthopedic/limp differences, other, respite, spina bifida, therapeutic, traumatic brain injury, visual impairments

Description

Music Therapy is an effective therapeutic and educational tool for children with a myriad of needs. Music therapy strategies can effect changes in skill areas important to developing cognitive, physical, communication, social and emotional skills.

NAMI of Montgomery County (National Alliance on Mental Illness)

Resource Category - support organization, support group

Specialty or Condition - therapeutic, other

Description

The National Alliance on Mental Illness offers free education, advocacy and support to individuals living with mental illness, their families and friends. Their services include NAMI family to family, NAMI basics, NAMI connection, NAMI family support group, kidshop, progression, and monthly educational meetings. To find schedules, local group meetings and more resources, visit their website.

National Association for Parents of the Visually Impaired

Resource Category - support organization

Specialty or Condition - visual impairments

Description

The National Association for Parents of Children with Visual Impairments (NAPVI) is a non-profit organization of, by and for parents committed to providing support to the parents of children who have visual impairments.

contact information

address

15 West 65th Street, New York, New York, 10023
Map & Directions

email

napvi@lighthouseguild.org

800-562-6265 view website

National Association for the Deaf

Resource Category - support organization

Specialty or Condition - deaf or hard of hearing

Description

National Association for the Deaf provides information in the areas of early intervention, education, employment, health care, technology, telecommunications, youth leadership, and more.They work to improve the lives of millions of deaf and hard of hearing Americans. The NAD also carries out its federal advocacy work through coalition efforts with specialized national deaf and hard of hearing organizations, as well as coalitions representing national cross-disability organizations.

contact information

address

8630 Fenton Street, Suite 820, Silver Springs, Maryland, 20910
Map & Directions

email

nad.info@nad.org

301-587-1789 view website

National Down Syndrome Society

Resource Category - support organization

Specialty or Condition - down syndrome

Description

The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome. Their resources include a helpline, information for new and expectant parents, local support, health care information, therapies and development, wellness, education, research, and much more.

contact information

address

8 E 41st Street, 8th Floor, New York, New York, 10017
Map & Directions

email

info@ndss.org

800-221-4602 view website