family support resource directory

The American Academy of Pediatrics (AAP), with support through a cooperative agreement with the Centers for Disease Control and Preventions (CDC) National Center on Birth Defects and Developmental Disabilities (NCBDDD) has developed a comprehensive, web-based FASD toolkit that helps to raise awareness, promote surveillance and screening, and ensure that all affected children receive appropriate and timely interventions. Visit the website to learn more about this toolkit.

Flying Horse Farms provides magical, transformative camp experiences for children with serious illnesses and their families – free of charge. The children who attend camp have illnesses including cancer, heart conditions, rheumatoid arthritis, blood disorders, asthma, gastrointestinal disorders and craniofacial anomalies. Campers will experience swimming, boating, fishing, canine therapy, high ropes, archery, and arts and crafts are just the beginning of the adventure at Flying Horse Farms. Each activity is designed to ensure every camper can participate and feel a sense of pride, accomplishment and freedom. Visit their website to sign-up for camp.

Fore Hope is a nationally recognized, non-profit organization that uses golf as an instrument to improve the quality of life for persons with disabilities, illness, injury, inactive lifestyle and other life challenges. This organization was one of the first to provide a therapeutic approach to golf by creating a program for persons of all ages, disabilities and economic backgrounds, while assisting them with their physical and emotional development.

Fun and Function is an adaptive technology and sensory tool provider. They specialize in fidgets, sensory tools used for therapy and various other products for sensory disorders.

The GBS|CIDP Foundation International is the preeminent global non-profit organization supporting individuals and their families affected by Guillain-Barre syndrome (GBS), chronic inflammatory demyelinating polyneuropathy (CIDP), and related syndromes such as multifocal motor neuropathy (MMN) through a commitment to support, education, research, and advocacy. To learn more and find resources near you, visit their website.

The Genetics Alliance performs research that actively engages participants and puts the research in context for individuals and families. They also inform and educate families on information and services.