what is the intractable epilepsy clinic?

Patients diagnosed with epilepsy sometimes have a hard time finding a medication that will help control their seizures. When a child has been prescribed at least two appropriately chosen seizure medications but continues to have seizures, this is called intractable epilepsy. About 30% of patients diagnosed with epilepsy will have interactable epilepsy.

why choose the intractable epilepsy clinic at Dayton Children's?

Our intractable epilepsy clinic is designed to take a more comprehensive approach at your child's epilepsy journey. Our team of specialists will re-evaluate your child's diagnosis and treatment plan to assess whether other possible treatment options may be explored. This may include consideration of diet management, alternate medications, surgeries such as Vagal nerve stimulation or resective epilepsy surgery if indicated.

what will my child's first appointment look like?

During your child's visit in the intractable epilepsy clinic they will see an epileptologist and neurology nurse practitioner. You will also see a pharmacist, a dietitian, and a social worker. Each member of the team has a specific role in learning about your child's epilepsy as each patient's journey is unique. The team will review your child's diagnosis and treatment plan to date and evaluate the next steps. Please plan on your visit taking 1-2 hours and it is recommended to arrive prepared with a complete list of current medications with dosages.

how often will I have follow-up appointments?

The frequency of follow-up appointments will vary depending on the next best step for your child.