Caring for a Seriously or Chronically Ill Child

• Chronic Fatigue Syndrome

  Chronic fatigue syndrome (CFS) is a complicated disease. It’s a physical condition that also can also affect a person emotionally.

• Chronic Kidney Disease: Caring for Your Child

  Parents of kids who have a chronic kidney disease often worry about what might happen next and what treatments are likely to be involved. Find answers here.

• Clinical Trials

  Deciding to enroll your child in a clinical study will depend on its potential benefits and risks, as well as your child’s particular illness. Learn more.

• Congenital Heart Defects

  Heart defects happen when there’s a problem with a baby’s heart development during pregnancy. Most heart defects can be treated during infancy.

• Costello Syndrome

  Costello syndrome is a very rare disorder that affects multiple organ systems. It causes causes problems that affect a child’s heart, muscles, bones, skin, brain, and spinal cord.

• Does My Child Need an Antibiotic? (Video)

  Antibiotics are powerful medicines that can help kids feel better — but only when they have certain illnesses. Find out if an antibiotic is right for your child.

• Electronic Health Records

  Many health institutions digitally store their patients’ health information. Learn about electronic health records (EHRs) and how they can improve health care.

• Extracorporeal Membrane Oxygenation (ECMO)

  Extracorporeal membrane oxygenation (ECMO) is the use of a machine to do the work that the heart and lungs normally do.

• Financial Planning for Kids With Disabilities

  These steps can help take the anxiety and worry out of your child’s financial future and make sure that your child will be taken care of even after you’re gone.

• Finding Respite Care

  Finding that perfect person to care for your child can be a challenge. These resources can help.